On May 29th, 250 people filled SoDo Park and raised a record-breaking $363,000 in a single night for FAM177A1 research. We are still pinching ourselves. None of it — not one moment of that night — would have been possible without the people behind it. The ones who made calls, pulled together tables, showed up early, stayed late, and gave something of themselves so the evening could shine. This post is for them.

The Science Is Rewriting What We Thought Was Set For years, many in our community quietly carried a belief we didn’t want to hold: that if a milestone was missed, it was gone forever. We didn’t accept it. But without proof, hope was often all we had. Then came a moment that changed something. While watching CNBC Cures, those of us tuned in heard Dr. Stan Crooke say something we haven’t been able to shake: “I was taught that for developmental delays, if you missed a milestone, it’s forever. We...

When I'm home, I'm in the bunker — tactical, calculated, doing whatever it takes. There isn't room for feelings. There's only the next problem to solve. But when I step away, they find me. And right now, I'm carrying a lot.