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Join date: Nov 3, 2020
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Posts (28)
Dec 12, 2025 ∙ 2 min
A Joyful Laugh, a First Step, a New Future
This end-of-year giving season, we are sharing the powerful role that our community plays in pushing research forward to help our FAM FRNDs.
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Nov 25, 2025 ∙ 2 min
Letter from our Founder: A Difficult Day, a Deeper Purpose
The circle of support for every child with FAM grows more and more and each year. As we enter the season of giving and gratitude, we are thankful for our circle.
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Oct 27, 2025 ∙ 3 min
What If Treatments are Already on the Pharmacy Shelf?
Drug repurposing for rare disease opens up pathways to faster treatments for children with FRND "FAM" Disorder.
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Jill Hawkins
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Rare Disease Mom
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