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Join date: Nov 3, 2020
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Posts (30)
Feb 25, 2026 ∙ 2 min
Letter from Our Founder: Rare Disease Day 2026—We’ve Never Been Closer
On Rare Disease Day 2026, Jill Hawkins shares why rare disease research is closer than ever to life-changing treatments for families impacted by FAM177A1.
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Feb 4, 2026 ∙ 2 min
Leaping Forward: Our Groundbreaking Tadpole Model
Discover the groundbreaking tadpole model revolutionizing FAM177A1 research. Learn how our tadpole model is paving the way for new treatments!
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Dec 12, 2025 ∙ 2 min
A Joyful Laugh, a First Step, a New Future
This end-of-year giving season, we are sharing the powerful role that our community plays in pushing research forward to help our FAM FRNDs.
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Jill Hawkins
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Rare Disease Mom
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