We’re honored to be selected by CURE Epilepsy as co-funding partners for the new Rare Epilepsy Partnership Award — a major step forward in advancing research for FAM177A1-related disorder.

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This grant supports groundbreaking work led by Dr. Berrak Ugur and her team at Yale University, who are using patient-derived brain cell and organoid models to study how FAM177A1 functions in the human brain.

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Their research will help us:

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🧠 Understand how FAM177A1 impacts brain development
🔬 Identify the protein’s cellular role and interactions
💡 Lay the groundwork for future targeted therapies

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Read more about this rare disease funding opportunity and what it means for our community.

 

Huge thanks to @CUREEpilepsy for believing in this work and helping us move faster toward a cure. And thank you to our donors for matching CURE Epilepsy's $50,000 grant, dedicating a total of $100,000 to FAM177A1 research!

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Together, we are accelerating cures and creating a brighter tomorrow for our FAM FRNDs.

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