Roommates and Mice
Our oldest son Nash just started his freshman year at the University of Utah. We are from Seattle. Nash's roommate Zack is from Bar...
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Jill Hawkins
- Jul 18, 2022
- 1 min
FAM177A1 on Biorosi's Few and Far Between Podcast
Jill Hawkins, Founder and President of the FAM177A1 Research Fund, had the honor of speaking with Dr. Marc Gas from Biorosi, on Episode...
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Jill Hawkins
- Apr 6, 2022
- 1 min
UDN Grand Rounds Features FAM177A1
FAM177A1 was the star of the show during the March 10, 2022 UDN Grand Rounds. Jennefer Kohler, Genetic Counselor from the Stanford Center...
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Jill Hawkins
- Feb 8, 2022
- 2 min
Adding Family to FAM177A1
After 16 years of not knowing another person in the whole world with our children’s diagnosis, we finally met another FAM177A1 family...
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Jill Hawkins
- Jan 5, 2022
- 1 min
FAM177A1 published in The Mighty
A story titled FAM177A1: Two Siblings' Ultra-Rare Disease Odyssey was published in The Mighty on January 4, 2022. You can read it here. ...
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Jill Hawkins
- Dec 21, 2021
- 1 min
FAM177A1 Story Published on Congenica Blog
The UK based genomic medicine company Congenica invited us to share our story on their blog. Have a read here. We are thrilled that...
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Jill Hawkins
- Oct 13, 2021
- 1 min
FAM177A1 Disruption: What's Your Function?
I was honored share our story at the 2021 Seattle Rare Disease Fair which included scientists, clinicians, patients, and patient...
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Jill Hawkins
- Sep 19, 2021
- 1 min
Roll out the red carpet!
Our short film about Charlotte and Cooper's diagnostic odyssey will be screened on Thursday during Biotech Week Boston! Thank you to The...
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Jill Hawkins
- May 26, 2021
- 1 min
FAM177A1 Poster Presented at Medical Genetics Conference
The following poster was presented at the American College of Medical Genetics Conference (ACMG) in April, 2020. Highlights include:...
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Jill Hawkins
- Nov 4, 2020
- 1 min
MOSC Zebra Fish Model Organism Update
Zebrafish: The MOSC ((Model Organism Sequencing Team) at the UDN created two rounds of zebra fish using two different methods to knock...
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Jill Hawkins
- Nov 4, 2020
- 1 min
Once Upon A Gene Podcast Interview
Jill had the honor of chatting with Effie Parks about FAM177A1 and our family’s story on her awesome podcast Once Upon a Gene. Take a...
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Jill Hawkins
- Nov 4, 2020
- 1 min
NPR Interview
Jill was interviewed by Bill Radke on KUOW, Seattle’s NPR station in conjunction with National Rare Disease Day. Take a listen:...
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Jill Hawkins
- Nov 3, 2020
- 3 min
FAM177A1 Hawkins Family Featured in Mercer Island Reporter
We are thankful that our local paper featured a piece about our diagnostic journey! Link to the article of read it below:...
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