Blog | FAM177A1

Letter from our Founder: A Difficult Day, a Deeper Purpose

The circle of support for every child with FAM grows more and more and each year. As we enter the season of giving and gratitude, we are thankful for our circle.

Jill Hawkins

2 days ago2 min read

What If Treatments are Already on the Pharmacy Shelf?

Drug repurposing for rare disease opens up pathways to faster treatments for children with FRND "FAM" Disorder.

Jill Hawkins

Oct 273 min read

Rare Disease Funding Milestone: CURE Epilepsy Partnership Advances FAM177A1 Science

We are thrilled to be selected by CURE Epilepsy as co-funding partners for this new rare disease funding opportunity, the Rare Epilepsy Partnership Award!

Jill Hawkins

Sep 152 min read

Letter from our Founder: Dock Hops, Dad Jokes, and a Whole Lot of Heart 💖

Letter from our FAM177A1 Founder about our recent Dock Hop and how joy is part of the cure.

Jill Hawkins

Aug 192 min read

Inside Rare Disease Stories: Meet the FAM Heroes Racing Toward a Cure 🎧

Listen to four inspiring podcasts with rare disease stories on Rare Awareness Radio that feature our founder, a researcher, a physician, and a parent.

Jill Hawkins

Aug 62 min read