Citizen Health is a platform that enables patients with rare conditions to get access to all their medical data in one place and accelerate critical research efforts with minimal effort. In partnership with over 80 advocacy partners and 12,000 patients, we’re supporting rare disease patients using their own health data to improve care and accelerate groundbreaking treatments.
The FAM177A1 Research Fund has partnered with Citizen Health to build critical natural history studies for our community - no site visits required! Citizen will do the work to collect your comprehensive medical history into your secure, digital profile and give you the option to contribute your de-identified data to accelerate research. Help our community unlock the insights hiding in our medical data and make huge leaps in understanding our disease and accelerating treatment options like never before. It just takes five minutes, sign up here today