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Join the unstoppable movement of hope for FAM Warriors.

Why we’re unstoppable

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Every child with FAM Disorder deserves a future without limits, and together we’re building one.

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The FAM177A1 Research Fund is an all-volunteer, parent-led nonprofit uniting scientists, clinicians, and families around the world in one mission: developing therapies for FAM Disorder, an ultra-rare condition with no treatment today. In just a few years, this movement has built the research infrastructure a cure requires, from patient cell lines and disease models to an international patient registry and a global network of leading researchers.

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Our FAM Warriors don’t give up, and neither do we.

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More ways to give

  • Text to give: Text FAM to 53-555

  • Double your impact: Many employers match charitable gifts. We’re enrolled with Benevity, so check with your HR team.

  • Give by check: Make checks payable to FAM177A1 Research Fund and mail to 8838 SE 72nd Place Mercer Island, WA 98040

  • Turn your Required Minimum Distribution (RMD) or stocks into HOPE!

 

Questions? Contact us at info@fam177a1. The FAM177A1 Research Fund is a 501(c)(3) nonprofit (EIN 87-3607948). Gifts are tax-deductible to the extent allowed by law.

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FAM177A1 Research Fund

info@fam177a1.org

A 501(c)(3) nonprofit corporation

Tax ID: 87-3607948

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The information provided on this website is not intended to diagnose or treat a disease or disorder. Please direct any medical-related questions to your physician. The FAM177A1 Research Fund is not responsible for any errors or omissions on this website.

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