Our goal is to improve the lives of everyone affected by FAM177A1-Related Disorder. We will do this by uniting the global FAM177A1 Disorder community to accelerate research and develop patient-focused treatments. 

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We cultivate a patient-focused, collaborative environment in the following ways:

• Make resources available to all scientists

• Encourage real-time data sharing

• Partner with clinicians, academic labs, biotech, and pharma