On Rare Disease Day 2026, Jill Hawkins shares why rare disease research is closer than ever to life-changing treatments for families impacted by FAM177A1.

The circle of support for every child with FAM grows more and more and each year. As we enter the season of giving and gratitude, we are thankful for our circle.

Letter from our FAM177A1 Founder about our recent Dock Hop and how joy is part of the cure.