Drug repurposing for rare disease opens up pathways to faster treatments for children with FRND "FAM" Disorder.

Listen to four inspiring podcasts with rare disease stories on Rare Awareness Radio that feature our founder, a researcher, a physician, and a parent.

On May 30, 2025 , Club Sur in Seattle erupted with energy, passion, and purpose as the FAM177A1 Research Fund hosted its 2nd Annual FAM...

In a powerful and moving talk at PNRI’s Science Matters Rare Disease Day Seminar on February 28, 2024, Jill Hawkins, FAM177A1 Research...