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FAM JAM 2026 — Thank You for Helping Us Soar


One month later, our hearts are still full.


On May 29th, 250 people filled SoDo Park and raised a record-breaking $363,000 in a single night for FAM177A1 research. We are still pinching ourselves. None of it — not one moment of that night — would have been possible without the people behind it. The ones who made calls, pulled together tables, showed up early, stayed late, and gave something of themselves so the evening could shine. This post is for them.


Amy Lynn

Our friend and spectacular aerial artist set the tone for the evening — one filled with hope and light. The moment she passed the light to Charlotte and Cooper took our breaths away. 



Nash Hawkins & Matt Lorch


Nash's emcee debut was spectacular and we are so proud of him! Together, with the world's best auctioneer and event partner Matt Lorch they brought energy and passion that moved people to give so generously. 


Our Planning Committee

There's a version of FAM JAM nobody sees: late night meetings, heavy lifting, quiet problem-solving. That version belongs entirely to our planning committee — and the care you brought to every detail carried the whole evening. We are so grateful.


THANK YOU — Michelle Bice, Julie Davis, Genevieve Morton, Beth Sampson, and Jennie Warren





Our Table Captains

Table captains are the heartbeat of FAM JAM. You didn't just buy a seat at the table — you built one. You made calls, sent texts, and brought the people in your life into ours. Because of you, strangers became advocates, and our community grew wings.


To every table captain who gathered their circle and made that room what it was: you are the reason this works. You filled the room. You filled our hearts.


THANK YOU — Stephanie Beers, Hilary Benson, Michelle Bice, Karen "Karbie" Bullard, Aly Burks, Melissa Cahoon, Lyndsey Gillis, Emer Hensey, Paula Holtzclaw, Laura Tomaselli, Mary Mark, Sally Martin, Nick Mautone, Genevieve Morton, Emily Vavrichek, Jennie Warren, and Women in Rare



Our Corporate Sponsors

FAM JAM is elevated by the generosity of businesses who believe in what we're building. Our sponsors gave so that every dollar donated could go straight to research.


Thank you for partnering with us!



Our In-Kind Donors

To each of our in-kind sponsors: your generosity made a difference you can't quite put a price on. We are deeply thankful. You made our silent auction sizzle, our treats for each guest sweet, and our dessert dash dazzle!


A special cheer to our Premier Wine Sponsor, Double Strand Winery — thank you for keeping our glasses full and our spirits higher!



Our Volunteers

They sold raffle tickets, checked guests in, and did whatever was asked of them — no task too small, no ask too last-minute. Thank you for showing up and making it look easy.


THANK YOU — Beckett Heynen, Brooke Comstock, Caroline Kelly, Hadley Holtzclaw, Jackson Cullen, Maya Smith, Perry Holtzclaw, Riley Burks, Sean Ronaldson, Sophia Angel



Our DJs

DJ Dil (Rob Dilworth) and DJ Smooth (Johnny Anderson) kept the energy soaring and the party going long into the night. Thank you for the soundtrack to an unforgettable evening.




We Are Soaring — Because of You

Every dollar raised brings us closer to a treatment for Charlotte, Cooper, and every child with FRND around the world. But the number on the page only tells part of the story. The other part is you — the people who gave your time, your relationships, your creativity, and your generosity to this cause.


Joy is part of the cure. And you brought it in abundance.


From the bottom of our hearts — thank you.


With love and relentless hope,


Jill Hawkins

 Founder & President, FAM177A1 Research Fund




Watch & See the Night Again

Videos


Photos by John Ludeman





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FAM177A1 Research Fund

info@fam177a1.org

A 501(c)(3) nonprofit corporation

Tax ID: 87-3607948

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The information provided on this website is not intended to diagnose or treat a disease or disorder. Please direct any medical-related questions to your physician. The FAM177A1 Research Fund is not responsible for any errors or omissions on this website.

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