On Rare Disease Day 2026, Jill Hawkins shares why rare disease research is closer than ever to life-changing treatments for families impacted by FAM177A1.

Letter from our FAM177A1 Founder about our recent Dock Hop and how joy is part of the cure.

On May 30, 2025 , Club Sur in Seattle erupted with energy, passion, and purpose as the FAM177A1 Research Fund hosted its 2nd Annual FAM...