On May 29th, 250 people filled SoDo Park and raised a record-breaking $363,000 in a single night for FAM177A1 research. We are still pinching ourselves. None of it — not one moment of that night — would have been possible without the people behind it. The ones who made calls, pulled together tables, showed up early, stayed late, and gave something of themselves so the evening could shine. This post is for them.

This end-of-year giving season, we are sharing the powerful role that our community plays in pushing research forward to help our FAM FRNDs.

The circle of support for every child with FAM grows more and more and each year. As we enter the season of giving and gratitude, we are thankful for our circle.

We are thrilled to be selected by CURE Epilepsy as co-funding partners for this new rare disease funding opportunity, the Rare Epilepsy Partnership Award!

On May 30, 2025 , Club Sur in Seattle erupted with energy, passion, and purpose as the FAM177A1 Research Fund hosted its 2nd Annual FAM...

Save the date for the most inspirational and festive fundraising gala of the year! May 30th, 2025 at Club Sur, Seattle, WA Check out the...

The FAM JAM event was a spectacular night, raising $250,000 for the FAM177A1 Research Fund