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FAM177A1 Disruption: What's Your Function?

Writer: Jill HawkinsJill Hawkins

I was honored share our story at the 2021 Seattle Rare Disease Fair which included scientists, clinicians, patients, and patient advocates. This was a great opportunity to share our diagnostic journey, what we know and still need know and where we are headed which is a treatment or cure!


You can view a recording below. This YouTube video includes the entire program; my talk starts at 1:12 and ends at 1:22.


Please share this with anyone who might be helpful in our treatment quest or knows of other patients!




 
 
 

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FAM177A1 Research Fund

info@fam177a1.org

A 501(c)(3) nonprofit corporation

Tax ID: 87-3607948

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The information provided on this website is not intended to diagnose or treat a disease or disorder. Please direct any medical-related questions to your physician. The FAM177A1 Research Fund is not responsible for any errors or omissions on this website.

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