When I'm home, I'm in the bunker — tactical, calculated, doing whatever it takes. There isn't room for feelings. There's only the next problem to solve. But when I step away, they find me. And right now, I'm carrying a lot.

This end-of-year giving season, we are sharing the powerful role that our community plays in pushing research forward to help our FAM FRNDs.

The circle of support for every child with FAM grows more and more and each year. As we enter the season of giving and gratitude, we are thankful for our circle.

Drug repurposing for rare disease opens up pathways to faster treatments for children with FRND "FAM" Disorder.

On May 30, 2025 , Club Sur in Seattle erupted with energy, passion, and purpose as the FAM177A1 Research Fund hosted its 2nd Annual FAM...